The European Joint Programme on Rare Diseases (EJP RD) is a new funding instrument to coordinate all activities ranging from research to coordination and networking activities. EJP RD is structured along five main components: Pillar 1 “Research funding,” Pillar 2 “Coordinated access to data and resources,” Pillar 3 “Capacity building,” Pillar 4 “Translational & clinical research methodology,” and Pillar 5 “Strategic coordination and management.”
Pillar 1 is based on the strong previous collaboration and reputation of the ERA-NET E-Rare (2006-2019) and will foster joint transnational calls for collaborative research projects encompassing various aspects of rare diseases.
EJP RD comprises 85 beneficiaries from 28 countries, and Pillar 1 involves 29 funding bodies from 22 countries.
Status of the FWF
FWF is a partner in Pillar 1 “Funding collaborative research on RD.”